This week I decided to do my blog on a piece of research I have been reading about for starting my third year project. The research paper is called Positive Perceptions in Families of Children with Developmental Disabilities, and was carried out by Hastings and Taunt (2002) at the University of Southampton. Here is a link to the research paper: http://www.ncbi.nlm.nih.gov/pubmed/11853529
The aims of the research were to review existing published research on positive perceptions and experiences of family members. Research also aimed to propose a model for further study of families’ positive perceptions (Hastings & Taunt, 2002). The model’s based on a hypothesis that positive perceptions have the role of strategies used to help families adapt to and cope with experiences of raising a child with disabilities. To do this they examined previous research and then compared themes, items and factors they identified from five of the studies. The studies were all slightly different (samples, methods, different concepts of positive perceptions etc.) but agreed the studies were valid and identified key issues. They concluded a number of things from the research. Including that it is clear family members do express positive experiences related to their child with a disability and the impact of the child on the family. It was also concluded the issues identified across the five different studies was consistent, suggesting that the data on the nature or structure of families’ positive perceptions and experiences is reliable (Hastings & Taunt, 2002).
Overall, I think this is a good piece of research. The paper clearly describes the aims of the research and is fairly clear to understand throughout. The research also expresses a need to study positive perceptions of families raising a child with developmental disabilities and the need to form more positive perceptions of these families. The study and others like it may also help shake negative feelings towards the children and their families e.g. pity, discrimination, assuming the family/child suffers etc. As many children with disabilities bring love and joy to their families, and are usually very kind and sweet natured people, however this is still often overlooked and many people cannot see past the child’s disability, and only perceive the negative side of having a child with a disability.
It is also fairly important research, as although this is a fascinating subject, there is limited research for studies of families’ positive perceptions and experiences. Therefore, the paper also discusses whether positive perceptions and experiences can be considered within existing family research models or if there is a need to explore a new theoretical approach (Hastings & Taunt, 2002). This is quite important because as although the research has been considered reliable, it could indicate previous research on the study of positive perceptions may not be reliable, if the questionnaires do not actually have questions relating to positive perceptions. This became clear during research as, Hastings and Taunt (2002) received a letter from a father who pointed out a problem with the questionnaires. The participant stated that in no point in the questionnaire was there a space in which parents could describe positive experiences they have had of raising a child with a disability. How can you test and research positive perceptions without asking about them? The father went on to explain that there are many difficult aspects of caring for a child with a disability … however; he also described some very positive feelings associated with his experience of raising a child with disabilities (Hastings & Taunt, 2002). This has also been shown in similar research, for example, Hornby (1992) stated stressful experiences and negative feelings, but also strong positive feelings and claims of personal growth.
This research links to my third year study because it discusses emotion experienced and expressed by family members raising a child with developmental disabilities. Expressed emotion (EE) is an attitudinal construct that reflects in speech and other behaviours. It is a measure of emotional climate, likely to be experienced by family members in particular (Hastings & Lloyd, 2007). We will be carrying out research that may or may not correlate with previous research!
References
Hastings, R. P. & Lloyd, T. (2007) Expressed emotion in families of children and adults with intellectual disabilities. Mental retardation and developmental disabilities research reviews. 13(4) 339-345.
Hastings, R. P. & Taunt, H. M. (2002) Positive perceptions in families of children with developmental disabilities. American journal of mental retardation. 107(2) 116-127.
Hornby, G. (1992). A review of fathers’ accounts of their experiences of parenting children with disabilities. Disability, handicap and society. 7, 363-374.